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Radical
Approach Integrates Disabled Students
By J. Quinn Martin
Special to The Moscow Times
In
many ways, Kovcheg School No. 1321 in eastern Moscow is an average Russian
school. It has a small playground, the teachers give lessons in math and
reading, and like every school across the nation, it opened its doors
after summer holidays last Monday. But Kovcheg No. 1321 is Russia's first
and only "integrated school," a radical educational project
that places disabled children in the same classrooms as regular kids.
At Kovcheg, some 200 students with autism, Down syndrome, cerebral palsy
and myriad other handicaps study alongside 300 children without disabilities.
"We think disabled children should have the same opportunities that
healthy children have," said Alexandra Lenartovich, the director
of Kovcheg. In Russia, where the mentally disabled are largely denied
access to education and isolated from society, that simple philosophy
is nothing short of revolutionary. Then again, Kovcheg grew out of a revolutionary
time. During perestroika a group of parents of children with developmental
disorders teamed up with psychology professors from Moscow State University
to initiate the Center for Curative Pedagogics, a nonprofit organization
that helps children with developmental disorders adapt to the real world.
Kovcheg was one of the group's first projects. The school received a license
to begin operating in August 1991, the same month that hard-liners staged
a failed coup against Mikhail Gorbachev and Boris Yeltsin banned the Communist
Party. The intervening 12 years have seen the school flourish: Its numbers
have grown from a few dozen mentally disabled children to 500 integrated
students. Generous state funding, thanks largely to the support of the
head of Moscow's education department, Lyubov Kezina, has allowed Lenartovich
to hire the extra specialist teachers necessary to meet all the students'
unique needs. The school has also opened art, craft and music workshops
and even bought a pony. Today the school is such a success that parents
of disabled and nondisabled students alike have a hard time getting their
children admitted. For the nondisabled kids, the draw is excellent teachers
and programs not found at every school -- such as orchestra or courses
in German, Spanish and Hebrew. For disabled children, Kovcheg offers special
studios throughout the school where students can paint, help weave a rug
or take acting lessons. A child might have a hard time learning math,
Lenartovich said, but be quite capable at music or handcrafts. The studios
aim to help every child succeed. While Lenartovich is proud of her school's
success, she admits it is a small step toward solving a big problem. Based
on government statistics, the Down Syndrome Association has calculated
that four out of five school-age children with mental illness or serious
learning disabilities -- roughly 94,200 kids -- simply do not receive
an education. These numbers reflect an established custom of giving up
disabled children at birth. These newborns enter what Human Rights Watch
has called an archipelago of cruel institutions that spans the country
and violates the basic rights of tens of thousands of children. A child
given to the state lives in a detsky dom, or children's home, until the
age of 4. The government then sends the child to an orphanage to live
with other disabled children from age 4 to 18. After 18 and on through
adulthood, a disabled ward of the state is forever isolated in a residential
home with other disabled adults. Roman Dimenshtein, who co-directs the
Center for Curative Pedagogics, traces the problem back to socialism.
"In Soviet times, the government told us we were on a path toward
a bright future and society was just getting better and better,"
Dimenshtein said. "Then along comes an 'incorrect' child. It just
didn't fit." The state's solution was to warehouse these people from
birth and keep them out of public view -- and that approach largely continues
today.
Downside Up, a Moscow center for children with Down syndrome, reports
that 90 percent of children born with the extra chromosome that causes
Down are placed in state institutions. The organization has an on-call
team that visits maternity hospitals to explain to mothers that they in
fact can keep the child. Natalia Rigina, project coordinator at Downside
Up, says solutions from the state are slow in coming and that the public
is woefully undereducated about mental handicaps. For instance, it is
still widely believed that Down syndrome is caused by a mother's substance
abuse. The Kovcheg school is one of the few public schools that Downside
Up recommends to parents. Dimenshtein counsels Moscow families that come
to his center to take their children to Kovcheg as well. But he laments
that the state has not committed funds to open schools like Kovcheg for
the mentally disabled throughout the nation. "The government is happy
to hand out big grants for sports and ballet -- things that look good,"
he said. "But for sick children? It's just not fashionable in Russia
yet."
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